A photo of human karyotype

Eugenics and Genetics in the News in 2013

A painting of a group of disabled people 's daily life

Sex and Disability, Part 2

By Adam Turner

This is the second post in a two-part reflection on some of the issues raised by a September BBC news story, Judge Approves Man’s Sterilisation in Legal First. (See part one for a synopsis of the story.) In part one I listed three reasons why people often believe adults with intellectual and developmental disabilities (I/DD) should not have sex or sometimes even be in romantic relationships. I discussed number one in part one, and will now look at numbers two and three.

Sex and Disability, Part 1

By Adam Turner

In September, BBC news ran a story titled, Judge Approves Man’s Sterilisation in Legal First. I started reading the story expecting a familiar case of medical authority and restrictive assumptions of what is and isn’t normal leading to surgical intervention. Not so. At least not exactly. Partway through the first few paragraphs of the news report I knew this story was much more complicated than I had imagined.

Reflections: A Conference on Children and “Imperfection”

By Adam Turner

Over the past weekend, I had the pleasure of participating in the Centre for Medical Humanities Imperfect Children conference at the University of Leicester. The conference included a wonderful mix of disciplines and both historical and present-day perspectives on the concept of “imperfection” and children. This usefully provocative focus led to an ongoing discussion during the two-day meeting about the definition of imperfection and how it relates to concepts like normality, health, and ability.

Thalidomide—The Good and The Bad

Sunday Morning Medicine

Let’s Talk About Gene Therapy

By Elizabeth Reis

It is exciting to read about promising new gene therapies that might make living with various disabilities easier or even render them extinct. Researchers at University of Massachusetts Medical School are working on a way to “turn off” the extra chromosome found in people with Down syndrome. If the gene therapy works as they hope, turning off the chromosome would mitigate some of the effects of Down’s. So far this possibility has only been glimmered in a laboratory dish, but ultimately the goal would be to turn off the extra chromosome prenatally, so that the brain would form without developmental and intellectual encumbrances.

Sterilization is Not the Solution

Eugenics: It’s Good for You!

Psychiatric Nursing at St. James Hospital

By Sandra Trudgen Dawson

I’ve been a little hesitant to write a blog about some of my experiences in a psychiatric hospital in 1980s Britain for a number of reasons. I am aware that those who suffer mental illnesses are some of the most vulnerable members of society. This was definitely true in the mid-1980s in Britain. I write this with the utmost respect for the patients I came into contact with and the nursing staff charged with their care.