Photo of a doctor's office.

Prenatal Testing and Counseling: The New Front of the Abortion Wars?

By Ginny Engholm

As everyone who reads this blog (or is on Facebook or Twitter) is by now well aware, the Supreme Court’s recent ruling in the Hobby Lobby case has dealt yet another powerful blow to women’s right to access contraceptives and manage their own health care, reproductive choices, and bodies. But a recent law—this one in Louisiana and regarding prenatal testing and counseling—poses yet another, but much less recognized, threat to women’s reproductive freedom. In May, Louisiana joined several other states (Massachusetts, Kentucky, Delaware, and Maryland) in passing a version of the Down Syndrome Information Act. This measure is part of the pro-information movement, which attempts to balance disparate groups and agendas within the Down syndrome community by bringing together both pro-choice and pro-life Down syndrome advocates in favor of providing women balanced, medically-accurate, and sensitive information about options when faced with a prenatal diagnosis of Down syndrome. The act as intended requires doctors to give appropriate medical information about the diagnosis and the options. It also requires doctors to give referrals to genetic counselors and relevant support services when delivering a prenatal diagnosis of Down syndrome to a patient.

A Lego man standing in his office, seeming to be anxious

On the Verge of a Nervous Breakthrough?: Interpreting Mental Illness

By Mary Elene Wood

A highway patrol officer straddles a woman who lies on her back by the side of a highway. His arm lifts high into the air, then, with what looks like substantial force, he strikes her in the face with his clenched fist. He does this over and over again. Early in July, news programs around the country quickly spread the story of a California Highway Patrol officer caught on videotape violently beating Marlene Pinnock, a 51-year-old homeless, presumably mentally ill, woman, along the side of a freeway in Los Angeles. The California Highway Patrol claimed that the officer was only trying to stop the woman from walking out into traffic, yet journalists across the U.S. decried, in one writer’s words, “the lack of training given to law enforcement officers to handle such people, even though officers all too often are society’s frontline mental health care providers.”

Adventures in the Archives: Searching for the Past

by Sarah Handley-Cousins

For much of this past year, I’ve been entrenched in dissertation research. Despite the long hours hunched over dusty papers, trying to decipher century-old handwriting, generally while cold and hungry, I’m not complaining. I’m continually amazed that I’m getting the opportunity to do exactly what I’ve always wanted: the work of history. What I wasn’t prepared for, necessarily, was the emotional work that would come along with it.

A group of athletes on the wheelchairs gathering on playground

The Paralympics, Past and Present

A photo of human karyotype

Eugenics and Genetics in the News in 2013

A painting of a group of disabled people 's daily life

Sex and Disability, Part 2

By Adam Turner

This is the second post in a two-part reflection on some of the issues raised by a September BBC news story, Judge Approves Man’s Sterilisation in Legal First. (See part one for a synopsis of the story.) In part one I listed three reasons why people often believe adults with intellectual and developmental disabilities (I/DD) should not have sex or sometimes even be in romantic relationships. I discussed number one in part one, and will now look at numbers two and three.

Sex and Disability, Part 1

By Adam Turner

In September, BBC news ran a story titled, Judge Approves Man’s Sterilisation in Legal First. I started reading the story expecting a familiar case of medical authority and restrictive assumptions of what is and isn’t normal leading to surgical intervention. Not so. At least not exactly. Partway through the first few paragraphs of the news report I knew this story was much more complicated than I had imagined.

Reflections: A Conference on Children and “Imperfection”

By Adam Turner

Over the past weekend, I had the pleasure of participating in the Centre for Medical Humanities Imperfect Children conference at the University of Leicester. The conference included a wonderful mix of disciplines and both historical and present-day perspectives on the concept of “imperfection” and children. This usefully provocative focus led to an ongoing discussion during the two-day meeting about the definition of imperfection and how it relates to concepts like normality, health, and ability.

Thalidomide—The Good and The Bad

Sunday Morning Medicine