This is the second post in a two-part reflection on some of the issues raised by a September BBC news story, Judge Approves Man’s Sterilisation in Legal First. (See part one for a synopsis of the story.) In part one I listed three reasons why people often believe adults with intellectual and developmental disabilities (I/DD) should not have sex or sometimes even be in romantic relationships. I discussed number one in part one, and will now look at numbers two and three.
In September, BBC news ran a story titled, Judge Approves Man’s Sterilisation in Legal First. I started reading the story expecting a familiar case of medical authority and restrictive assumptions of what is and isn’t normal leading to surgical intervention. Not so. At least not exactly. Partway through the first few paragraphs of the news report I knew this story was much more complicated than I had imagined.
Over the past weekend, I had the pleasure of participating in the Centre for Medical Humanities Imperfect Children conference at the University of Leicester. The conference included a wonderful mix of disciplines and both historical and present-day perspectives on the concept of “imperfection” and children. This usefully provocative focus led to an ongoing discussion during the two-day meeting about the definition of imperfection and how it relates to concepts like normality, health, and ability.
I was listening to the BBC world news the other day and a story caught my attention. The story was […]
By Jacqueline Antonovich
-Meth and Mormon Tea.
-Mmmm…Panopticon pie.
-Building dorms for the deaf.
-A history of “snake-oil salesmen.”
-The modern history of swearing.
-Victorians liked to smile sometimes.
By Elizabeth Reis
It is exciting to read about promising new gene therapies that might make living with various disabilities easier or even render them extinct. Researchers at University of Massachusetts Medical School are working on a way to “turn off” the extra chromosome found in people with Down syndrome. If the gene therapy works as they hope, turning off the chromosome would mitigate some of the effects of Down’s. So far this possibility has only been glimmered in a laboratory dish, but ultimately the goal would be to turn off the extra chromosome prenatally, so that the brain would form without developmental and intellectual encumbrances.
This is the second in a two-part series responding to a recent report by The Center for Investigative Reporting (CIR) […]
A recent report from the Center for Investigative Reporting (CIR) disclosed that physicians, under contract with the California Department of […]
I’ve been a little hesitant to write a blog about some of my experiences in a psychiatric hospital in 1980s Britain for a number of reasons. I am aware that those who suffer mental illnesses are some of the most vulnerable members of society. This was definitely true in the mid-1980s in Britain. I write this with the utmost respect for the patients I came into contact with and the nursing staff charged with their care.
On December 15, 2011, the Obama administration announced “administration action” to protect the nation’s 1.7 million home care workers. President Obama called for the establishment of minimum wage and overtime standards that all workers recognized in the Fair Labor Standards Act (FLSA) received. These new reforms would virtually eliminate the “elder companion exemption” in the FLSA that Congress established in 1974 which allowed home care employers to continue their exploitation of home care workers.
President Obama delivered this announcement four years after the Supreme Court decided unanimously that the case’s plaintiff Evelyn Coke, and other home care workers, were not entitled to minimum wage protections and overtime pay. Like most home care workers, Evelyn Coke worked long hours for little pay. Coke performed what scholars Jennifer Klein and Elieen Boris call “intimate labor”—she cooked, cleaned, and bathed her clients.[1] Coke worked 24 hour shifts often and she worked decades without receiving benefits. When Coke decided to sue for back pay, the Supreme Court ruled against her, reinforcing the historical stigmatization of intimate labor. Two years later, the home care workers’ movement lost Evelyn Coke. Home care workers are still waiting for Obama’s “administration action” four years after the ruling.
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