I recently had the pleasure of speaking with Sharrona Pearl about her new book, Face/On: Transplants and the Ethics of the Other. Below are excerpts from our conversation, which ranged from disability, to artistry, to parenting, to sex transitions, all illuminated by Sharrona’s insights from the history and culture of face transplants. Lara: I really… Read more →
Tag: Disability
Care Gone Wrong: Bad Moms, Fake Disabilities, and Imagined Illnesses
At first, it seemed impossible that Gypsy Rose Blancharde had murdered her mother. Dee Dee appeared to be her daughter’s most outspoken advocate. She was the strong and devoted caregiver that Gypsy Rose, who appeared far younger than her 23 years and spoke in a Minnie Mouse squeak, required. Or so it seemed. Dee Dee… Read more →
Finding My Amputee Brethren
I remember vividly the first amputee I met after my amputation. Driving down with my spouse to Wake Forest from our small college town so that I could get more chemo, we were at a rest stop. I had only recently received my first “test” leg and hobbled along, with atrophied muscles from months of… Read more →
No Excuses: The 21st-Century Supercrip in Three Snapshots
In the past decade, the landscape of commercial fitness has changed drastically. It has become less dependent on stationary exercise machinery, and instead emphasizes free weights. CrossFit gyms and obstacle course races (OCR) such as Tough Mudder and Spartan Race have become mainstream fitness options. Both CrossFit and OCR have a paramilitary ethos and randomized training…. Read more →
“Save Changes”: Telling Stories of Disability Protest
At first, it was a simple case of “if you can’t beat ‘em, join ‘em,” as I worked with WikiEducation Foundation to teach a methods course in which students created disability history content. But the more I learned, the more it became clear that we were engaging in multiple forms of protest, especially once I… Read more →
Bradley Snyder and the Legacy of First World War Blind Veteran Rehabilitation
On April 30 People Magazine featured a story on Brad Snyder, a young swimmer seeking a gold medal at the summer Olympics in Rio this year. Snyder’s journey is extraordinary in and of itself, having served two tours of duty in the Middle East as a bomb disposal technician. The story is perhaps most intriguing,… Read more →
Playwright Alice Eve Cohen Asks Us to Reconsider What We Think We Know about Pregnancy and Motherhood
“What makes a mother real?” asks writer and performer Alice Eve Cohen in her newly-published play, What I Thought I Knew. In 1999, Cohen experienced the most improbably and bizarrely complicated pregnancy imaginable. Her play is a crystallization of her stranger-than-fiction pregnancy memoir that was acclaimed at its 2009 publication with book-of-the-year awards from Salon… Read more →
“Me Before You”: Hollywood’s Disability Problem & the Perils of Assisted Suicide
The recent movie Me Before You, based on the best-selling book by Jojo Moyes, has been marketed as the tearjerker romance flick of the summer. The film stars Emilia Clarke (of Game of Thrones fame) and Sam Claflin (The Hunger Games). But the movie has drawn fierce protests from disability rights activists, who say that the… Read more →
I Could Wrestle with my Disability, but I Think I’ll Dance Instead
This post is the inaugural essay in an occasional series we’re calling Clio Gets Personal, a special and infrequent departure from our typical historical and cultural criticism featuring more intimate stories. A year and a half ago, I gained a permanent dance partner. That’s what I’ve decided. That’s how I need to think about the damage to my visual… Read more →
Sorry, I’m Disabled. Oh, Wait, I’m Not Sorry, Just Disabled.
“Sorry,” I say, “Sorry, but would you mind giving me the directions again a little slower? I have a visual impairment and I didn’t see which way you were pointing.” “So sorry, excuse me for bumping you, I didn’t see you there.” “I’m sorry I didn’t think to get permission ahead of time, but I’m… Read more →