In Random Families: Genetic Strangers, Sperm Donor Siblings, and the Creation of New Kin, sociologists Rosanna Hertz and Margaret Nelson […]
Are Our Genes Really Our Fate? DNA’s Visual Culture and the Construction of Genetic Truth
The direct-to-consumer genetic testing company 23andme has recently been described by journalist Erika Check Hayden as a “unicorn.”1 For Hayden, […]
Eugenics and Genetics in the News in 2013
By Tina M. Kibbe
Happy New Year! As another year ends, I wanted to take a look at three news stories involving eugenics and genetics in 2013 that you may have missed.
Sex and Disability, Part 2
By Adam Turner
This is the second post in a two-part reflection on some of the issues raised by a September BBC news story, Judge Approves Man’s Sterilisation in Legal First. (See part one for a synopsis of the story.) In part one I listed three reasons why people often believe adults with intellectual and developmental disabilities (I/DD) should not have sex or sometimes even be in romantic relationships. I discussed number one in part one, and will now look at numbers two and three.
Sex and Disability, Part 1
By Adam Turner
In September, BBC news ran a story titled, Judge Approves Man’s Sterilisation in Legal First. I started reading the story expecting a familiar case of medical authority and restrictive assumptions of what is and isn’t normal leading to surgical intervention. Not so. At least not exactly. Partway through the first few paragraphs of the news report I knew this story was much more complicated than I had imagined.
Let’s Talk About Gene Therapy
By Elizabeth Reis
It is exciting to read about promising new gene therapies that might make living with various disabilities easier or even render them extinct. Researchers at University of Massachusetts Medical School are working on a way to “turn off” the extra chromosome found in people with Down syndrome. If the gene therapy works as they hope, turning off the chromosome would mitigate some of the effects of Down’s. So far this possibility has only been glimmered in a laboratory dish, but ultimately the goal would be to turn off the extra chromosome prenatally, so that the brain would form without developmental and intellectual encumbrances.